In case any of you don't remember, tomorrow is Wednesday...the day we are supposed to go home. Well, that's not happening. Although Kyson did well in surgery and has continued to do quite well, there are some issues we have to get resolved before we can go home. The biggest issue is he's not eating very well. Yesterday he ate at 4:00pm and then didn't eat again 9:00am. That's a long time! I was getting so stressed because I was trying so hard to get him to eat. When he finally ate at 9:00am I wanted to jump for joy. He did a little better today and ate at noon and about 3:30pm but again I haven't been able to get him to eat tonight. He is also very tempermental. He will be so happy one minute and the next screaming like he is in so much pain. He is still taking quite a bit of pain killers to get him to calm down. Until he can make it through a day without any heavy pain killers I don't think they will let us go home. I actually don't want to go home with the way he is right now. It would be stressful trying to do this all on my own without the monitors reassuring us that he is doing ok.
Being in the hospital is definitely like a roller coaster ride. It is very exciting when things are going well, but very frustrating when there are set backs. Right now I have no idea when we will be able to go home because it's all going to depend on how well he eats and his temperment the next couple of days.
Jared's grandparents came and rescued me (and Jared) and took us out to eat. It was nice to get away from this hospital even if it was just a couple of hours! Thank you to everyone who has come by to visit or called just to check up on us. We also really appreciate everyone's thoughts and prayers. I don't know how we would make it through this without all of you!
Tuesday, September 2, 2008
Rollercoaster ride!
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4 comments:
I am sorry you are not coming home today, don't get too discouraged three steps forward one step backward. It seems they always would say you will be able to home on such and such a day and that never happened. I stopped listening to promises of days because how it happens is one day you will wake up and out of the blue they will say, are you ready to go home? lets get him discharged!
As for eating, Lincoln was the same way, I don't know I just think would you have a great appetite after open heart? Give him time it hasn't even been a week.
I hope they let you go home soon, because it seemed to me that Lincoln and I were so much more relaxed and things were less stressful once we got home. He always progresses faster and better at home. somethings to talk to his doctors about. Try to get some sleep, I know I never did when we were in the hospital.
Keep your chin up and smile it creates endorphins!
Hey Andrea, Keep hanging in there, you are doing a great job. I know how you feel though about having to deal with setbacks. We had a lot of those when Chloe was in the hospital. They can be frustrating. But hopefully soon, Kysons's body will get adjusted to the changes and he will start feeling better enough to eat and to come home. We are praying for you guys!
I'm sad I didn't make it out to visit you yesterday. I don't know if it's allergies or not but G, B, and I all have runny noses and sneezes. G also has a nasty cough. As much as I want to visit and just be there for you I wouldn't want to risk introducing any "nasties" to little Kyson. When is Caleb coming home? I'm happy to help in ANY way that I can - you know that :)
All in good time. I would rather he stay until he is strong enough and pain free enough to be a happy man at home, which would make a happy mom and happy home. You are doing great!
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