Congenital Heart Disease

A while back I found the blog to a man named Paul Cardall who has been living with CHD (Congenital Heart Disease) his entire life. He has quite an amazing story and I feel inspired by his life. He is currently waiting for a heart transplant. He put together this video that contains pictures of over 100 children and adults living with CHD. There are three pictures of Kyson in it around the 6 minute mark.


On Paul Cardall's blog he explains the need to raise awareness of CHD. He says,
"'Congenital Heart Defects are very different from “regular” adult heart problems. Experts recommend that those with complex conditions should receive regular care at programs that specialize in adult congenital heart care. But most complex heart defect survivors are currently cared for at centers with no special training in congenital heart problems,' according to ACHA (Adult Congenital Heart Association).

Those of us with CHD are living longer but there is a national shortage of ACHD programs. Many of you have children with CHD. As they grow older they'll need special care to keep them going as long as possible. Ultimately, we are all in God's hands. But until then we should fight to live and enjoy this beautiful world. He wants that for each of us."

Paul then goes on the explain a bill that is going through Congress to try and get federal funding for ACHA. To read what Paul said on his blog about this bill and to find out what you can do to help click HERE.

I am planning on writing an email to our lawmakers here in Mesa and asking them to sign on as a sponsor to this legislation (he explains how to do this on his blog if you click the link above) and hope that others will too. This is something that could make a big impact in Kyson's life as he grows up living with CHD especially as he gets older and into his adult years. Please take a few minutes and email your lawmakers also. Thank you!