Yesterday we took Kyson to see his favorite doctor, Dr. Alhadheri! He is always so good when we go. He loves to let everyone listen to his heart and take pictures of his heart:) We did the normal routine of getting his weight, height, blood pressure, O2 sats, EKG, and then echo.
After all of that we talked to Dr. Alhadheri about what the game plan is for Kyson. First of all he wants Kyson to have his surgery within six months of his heart cath. That means sometime between now and February. He said we can pick the date, it just has to be in that time frame. You would think that it would be easy to find a date that works but it's hard with Jared in school. The only time he has off between now and then is Thanksgiving week and Christmas. I would really rather not spend the holidays in the hospital if I can help it!
Oh, and before we pick a date, Dr. Alhadheri would like us to meet with Dr. Pearl. Kyson's previous surgeon (Dr. A) has moved to a hospital in CA so we need a new surgeon. From what I've heard from fellow heart Moms, Dr. Pearl is great so I'm not worried. When we meet with Dr. Pearl we will discuss what he plans to do in the surgery. Kyson has a leaky tricuspid valve. The big question is do we leave it alone or do we go in and try to fix it? If they try and fix it, the surgery becomes a lot more complex and risky since they have to stop the heart to be able to work on it. If they just go in and do the Fontan (hook the inferior vena cava up to the pulmonary artery) they wouldn't have to do anything to his heart which would be great. From what Dr. Alhadheri said, I think he's leaning towards leaving it alone. He said the leak hasn't gotten worse since the Glenn two years ago, so he's hoping it will maintain itself. All I know is I'm grateful for these brilliant men who can make this decision and who have Kyson's best interest at heart.
The thought of taking Kyson in for another surgery makes my heart race and my eyes tear up. At the same time, the surgery has been on the back of my mind since his previous surgery so I will be grateful to get it over with. We have been blessed beyond measure with how well Kyson has done. I couldn't be more grateful and I will continue to put my trust in the Lord. I don't know how I could make it through all of this without the comforting power of the Spirit. What a blessing the gospel is!
Tuesday, August 24, 2010
Surgery coming soon!
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3 comments:
Wow! I am happy you have a time frame and good luck finding the best time to do it! You are never far from our thoughts, all will be well.
You'll really like Dr Pearl.. he's great!! Kyson will do great with the Fontan! I know it's going to be SO hard to hand him over, but I'm sure the end result will be worth it.
Andrea
I should have just checked your blog instead of asking you all of those questions during vt. Oh well. :) Glad to know that Kyson can have this surgery and you will be able to put a lot of the worry behind you!
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