It's been 2 1/2 years since Kyson's last surgery. It's been a wonderful 2 1/2 years. It has been amazing to watch him grow. He has such a broken little heart, yet he runs around with all the other kids at the park and does all the crazy things little boys do! Recently though I have had to watch as he is growing out of his Glenn surgery. He NEEDS the Fontan. He turns blue so easily these days and so is out of breath just by climbing the stairs that he has to sit and breathe for a few minutes before continuing on. I watch as Caleb runs around the park climbing up the stairs, going down the slides, riding his bike around... Kyson tries but he just can't keep up! He is always having to stop to catch his breath.
The thought of taking Kyson back in for surgery breaks my heart but as I watch him I know it's necessary. Yesterday he had an echo and the tech showed me some pictures of his heart. She specifically pointed out his tricuspid valve that is leaking. She showed me how it's not formed correctly so every time it pumps it allows blood to go back up to the atrium. This just causes his heart to have to work that much harder. The big question is do we try and fix this valve or leave it alone? It's tough to know and not a call I want to make. I just hope Dr. Pearl and Dr. Alhadheri both feel really good about one way or the other. I am anxious to hear what they think. We currently have Kyson's surgery scheduled for March 7th. That's less than two months away...wow!
Thursday, January 13, 2011
My thoughts on surgery
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6 comments:
All you can do is pray about the decision and trust dr pearl's advice. He has always been up front and honest with us about Owen. He was the one that came out of the cah lab and told us that if it were his son, he would start looking at transplant centers. Honest. Kindhearted. He will know what's best for kyson. Did they tell you if it's a mild or moderate leak? I would ask what the odds are that they can actually fix it. Dr hanley only gave it a 50percent shot on Owen's valve repair, but if it's irrepairable, he will replace it. Owen has a severe leak. I'd ask dr pearl if he plans on replacing kyson's valve if it cannot be repaired? He may not find it necessary. Just some thoughts. You will have no doubt what the right decision is. Just pray about it with your hubs.
I would trust Andrea on this one, since you share the same doctor and she is always looking out for what's best for little Owen.
It breaks my heart to see that little face and his struggle to keep up with his brother. They are both adorable and I will add them to my Prayers.
Go with your heart and mom instincts, they never fail.
(HUGS)
When the Fontan is over, Kyson will be ALL OVER THE PLACE and you will wonder how in the world he is managing everything he does on only half! It is incredible what the Fontan does for these kids, you will feel so much better cause you will be able to see how much better he is.
It is never fun having those surgeries on the horizon- but he looks like a tough little man! He'll do great! OUr thoughts and prayers are with your family!
Hi Andrea, Its Heather Van from the ward. I just saw that you commented on Liz Dennisons blog about Jake. She is a good friend of mine from our last ward. I hope everything is ok with your little boy. I didnt know he had to have surgery. I know that everything will work out for you guys, stay positive! Our blog is thevanoofam.blogspot.com but it is private, email me if you want an invite. mikevanoo@msn.com
Wow...it's amazing how time flies by! It's crazy that it is less than two months away. I will be keeping everyone in my prayers! Love you! :) Trust in the Lord...He will carry you!
I love seeing the pictures of how well your little guy has done after the Glenn. I feel for you as you prepare for the next surgery. They closed off Logan's tricuspid valve during his Glenn procedure to keep it from leaking. I hope you guys can figure out the best solution for your little guy. Thanks for all your comments and support over the last month- this heart community is amazing.
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