Final days at the hospital

Wow! So I have been meaning to do this post from the first day we got home from the hospital! We have been so busy and I just haven't had time to do it. Also, Kyson has taught me a lot and one of the greatest things he has taught me is what a gift it is to be a mother. I know that as mothers it is so important to spend time with our children. I have been trying to spend less time on the computer and more time with my children when I can. Anyway, here's some pictures of our last week or so in the hospital.
For about two weeks in the hospital Kyson wasn't able to eat or drink anything. He would beg for his medicine because he would get a sip of water after he took it to wash it down. Finally his drainage began to slow down. Dr. Pearl wanted to challenge him to see if eating something would cause his drainage to pick back up. It was so cute to watch Kyson get SO excited to eat. Poor thing just couldn't eat very much...two bites and that was it for the first couple of days.


While in the hospital Kyson really missed Caleb. He would get excited when he would come visit especially when he started feeling better. Caleb could always get him to laugh and giggle in ways no one else could.




Kyson really enjoyed playing with the dogs that came by almost every day. This one was huge!


While in the hospital Kyson was well known as the screamer and the bubble man. Yes, he screamed A LOT and yes he blew A TON of bubbles over the course of our time there. Jennifer, the child life specialist, knew of Kyson's love for bubbles and brought him some that don't pop. They were covering everything in his room! This was actually the day we left to go home and Kyson had a hard day so we were trying to cheer him up.


The day we came home was actually a difficult day for Kyson and me. We were told we were going to be able to leave after they put in a new smaller chest tube. They had to sedate Kyson to put in the chest tube and the sedation made him feel crummy. Also, when they put the new chest tube in it drained a lot (300 mls right away) and they were threatening to keep us there longer. I was having a hard time with that but only wanted to do what was best for Kyson. Gratefully they decided to give us the go ahead to leave later that day about 6pm. Kyson was still not feeling good so he was not happy about leaving! I don't think he really understood what was happening because I would tell him we were going home and he would cry and say he didnt want to go home! I really think he began to think of that hospital room as his home. He was confused and upset. This is a picture of us leaving. Kyson was crying in most of the pictures I took but he had a moment of being happy to see the trains.

Once we got outside and Kyson saw the car he got excited and I think he finally understood what I meant by going home. He kept saying he wanted to play the Wii game so one of the first things we did when we got home was let him and Caleb play a game together:)


It has been so wonderful to have him home. It's almost been a month already and I can't believe how fast the time has flown. He came home with a chest tube on Wednesday May 11th but he didn't have to have it long. They took it out Monday the 16th and he has done well ever since. Friday, the 20th he had a chest x-ray done and I was told it looked great! That was such wonderful news. We were told to keep him on a 10 grams of fat diet for four weeks after that x-ray. It's almost been 3 weeks. I'm very hopeful that in one more week we will be able to be done with this crazy diet. He is so skinny and needs a little more fat in his diet! As soon as they give us the go ahead I think we are going to throw a huge party. Hmm...maybe a huge pizza party!?!?!