We met with Dr. A this afternoon and he has decided to go ahead with Kyson's surgery on Tuesday. We check into the hospital at 6 am and his surgery should begin around 7:30 am. We were told it will last around 6 hours. When he returns from surgery he will look similar to how he looked after his first surgery except they don't plan on leaving his sternum open again. He will have a couple of very difficult days where his body will have to go through a huge adjustment. If everything goes as planned we were told we should have a hospital stay of around 5 days. All I can say is I'm looking forward to getting this overwith!
To add a little, here is what Kyson is going to be going through on Tuesday:
1.) Removal of the restrictive band around his pulmonary artery placed during his first surgery
2.) Removal of the shunt which created a temporary path between his pulmonary artery and aorta placed during his first surgery.
3.) Permanent connection of his pulmonary artery and his aorta which provides two paths out out of his heart which is a backup systerm in case something happens to his aorta as he grows.
4.) Splitting of his left and right pulmonary artery (right side is for blood going to lungs and right side is blood going to the body which is part of that backup system)
5.) Connection of his superior vena cava (blood coming from head) to his new right pulmonary artery (blood going directly to lungs bypassing the heart)
Kyson is very healthy and all the doctors are optimistic for a fast recovery. None the less, Kyson will be undergoing major surgery on Tuesday. We appreciate all the prayers and help that we have and will recieve from all of our family and friends.
Thursday, August 21, 2008
Surgery on Tuesday
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10 comments:
I'll be thinking of you and my prayers are with you and your family. I love little Kyson.
Jared, I am so happy to see you as a dad with a little family. I am sorry to hear about Kyson but I am so thankful there is modern medicine and technology to help. My prayers will be with your little boy.
You can do it! Let us know how we can help and as always we are thinking and praying for you.
We will keep your family in our thoughts and prayers even more than usual. Update us when you can. He is such a strong cute little baby.
curious, what does DORV mean for your little man along with HLHS? how did they not catch it earlier? Surviving for two months is almost unheard of with HLHS, did his duct not close or did the DORV change something to help him live? Sorry for all the questions, but I do have to say you have been very blessed, and I am sure the Lord has great works for little Kyson. It seems every baby with HLHS is so different. I would love to keep up and see how Kyson is doing, and I will keep you in my prayers for Tuesday, Lincoln healed a lot faster after the Glenn, I hope this is the case for Kyson. hang in their before you know it he will be running with around with his big brother!
We'll be praying for you guys and especially little Kyson. He is a lucky boy to have such great parents!
In response to the Cagle Family, DORV means Double Outlet Right Ventricle. He showed very little signs of problems because the opening between the two atriums stayed open (assuming due to high pressure). His Aorta and Pulmonary Artery are both in his Right Ventricle (DORV) and his Mitral valve is completely undeveloped. There is absolutely no function of his Left Ventricle.
Sorry another question, will the DORV give him extra problems with only a right ventricle?
As I understood it, the fact that he has DORV is an advantage to him because he has a completely healthy aorta. It did not have to be rebuilt. I'm not sure what role the left ventricle plays in HLHS so I'm not sure how that changes things for him. I just know that his right ventricle pumps all of the blood to his body so it's good that his aorta comes off that side and is healthy.
Wow that is wonderful! I hope you don't mind my curiosity, having a HLHS child myself I get curious about the heart and others situations. Oh yah, the left ventricle plays no role in HLHS, since it is either to small to function or nonexsistant, so It wouldn't affect his left side at all, but I am glad to hear it actually helps the right side.
Maybe you already know this, but there is a support group online www.hopeforhlhs.com. Sometimes it can be helpful if you have questions, and it is nice when I have been able to answer someone elses question because I have been through the same thing.
Sorry to hear about the delay it happens a lot! But who knows maybe the Lord had his hand in it, I could tell you a good story about that. :)
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